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Join us in shaping the future of sickle cell care in south east London
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Tell us your views on community sickle cell care in South East London
Sickle cell services across south east London are changing. One of the ways we are doing this is by providing a new community-based service designed to give greater support to people living with sickle cell disorder of all ages. We are doing this by focusing on these areas:
More nurses: There will be more specialist nurses available for both children and adults with sickle cell. These nurses will work with local NHS trusts.
Wider team of experts (multi-disciplinary team): Patients will have access to community-based dietitians, physiotherapists, psychologists, and pharmacists who can help manage your condition.
Help with everyday life: The service can offer welfare advice and support on benefits and legal matters.
Peer support: Young people with sickle cell can connect with others to share experiences and support each other through a Sickle Cell Society programme. Find out more in our poster.
Education and information: New resources will help patients, schools, workplaces, and healthcare professionals learn more about sickle cell disorder.
How you can get involved
If you are someone living with sickle cell disorder, or a parent or carer of someone living with sickle cell disorder, and you live in south east London (Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark), we would really appreciate hearing from you. Your feedback is very important to us, and this will guide us in shaping and developing the best health services for sickle cell patients in our community. Thank you for your time and input.
Thank you to those who completed our survey on previous experiences of sickle cell community services. We will be using the information you gave to adapt and improve our service to suit your needs.
We will be setting up some workshops in the next few months to discuss care for people living with sickle cell and how we could make our community service better. If you would like to be involved, please contact us at gst-tr.selsicklecommunity@nhs.net
Next steps for the service
We are working at pace to roll out the enhanced community service for all south east London (Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark) residents living with sickle cell disorder. While some areas may already have access to a range of specialised support, others are still in the process of recruiting healthcare professionals. We're working hard to ensure that all patients in south east London can benefit from this improved service as soon as possible.
Context and background
Sickle cell disorder can be a very challenging condition to live with. Here in south east London, we're putting in great effort to improve the care available for everyone with sickle cell. Our work is part of a wider initiative across the capital, the London Sickle Cell Improvement Programme. The London Sickle Cell Improvement Programme is also making changes to community care across the NHS in London, alongside making patient information accessible and digital on the Universal Care Plan, and setting up sickle cell emergency bypass units.
You can find out more about what changes are happening to sickle cell care in South East London on the South East London ICS website.
Tell us your views on community sickle cell care in South East London
Sickle cell services across south east London are changing. One of the ways we are doing this is by providing a new community-based service designed to give greater support to people living with sickle cell disorder of all ages. We are doing this by focusing on these areas:
More nurses: There will be more specialist nurses available for both children and adults with sickle cell. These nurses will work with local NHS trusts.
Wider team of experts (multi-disciplinary team): Patients will have access to community-based dietitians, physiotherapists, psychologists, and pharmacists who can help manage your condition.
Help with everyday life: The service can offer welfare advice and support on benefits and legal matters.
Peer support: Young people with sickle cell can connect with others to share experiences and support each other through a Sickle Cell Society programme. Find out more in our poster.
Education and information: New resources will help patients, schools, workplaces, and healthcare professionals learn more about sickle cell disorder.
How you can get involved
If you are someone living with sickle cell disorder, or a parent or carer of someone living with sickle cell disorder, and you live in south east London (Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark), we would really appreciate hearing from you. Your feedback is very important to us, and this will guide us in shaping and developing the best health services for sickle cell patients in our community. Thank you for your time and input.
Thank you to those who completed our survey on previous experiences of sickle cell community services. We will be using the information you gave to adapt and improve our service to suit your needs.
We will be setting up some workshops in the next few months to discuss care for people living with sickle cell and how we could make our community service better. If you would like to be involved, please contact us at gst-tr.selsicklecommunity@nhs.net
Next steps for the service
We are working at pace to roll out the enhanced community service for all south east London (Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark) residents living with sickle cell disorder. While some areas may already have access to a range of specialised support, others are still in the process of recruiting healthcare professionals. We're working hard to ensure that all patients in south east London can benefit from this improved service as soon as possible.
Context and background
Sickle cell disorder can be a very challenging condition to live with. Here in south east London, we're putting in great effort to improve the care available for everyone with sickle cell. Our work is part of a wider initiative across the capital, the London Sickle Cell Improvement Programme. The London Sickle Cell Improvement Programme is also making changes to community care across the NHS in London, alongside making patient information accessible and digital on the Universal Care Plan, and setting up sickle cell emergency bypass units.
You can find out more about what changes are happening to sickle cell care in South East London on the South East London ICS website.
We in south east London are committed to improving community care for people living with sickle cell disorder of all ages. Community services are healthcare and support services given outside of hospitals, often in local areas or homes, that help people with their health and well-being.
We would value your feedback from this survey to understand your previous experiences of sickle cell community care. All your feedback will be used to guide us in shaping and developing the best health services for sickle cell patients in our community.
We are keen to hear from people living with sickle cell of all ages, alongside parents or carers of people living with sickle cell disorder in south east London: Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark.
This survey is anonymous. Please do not include any identifiable information (like your name, full address, date of birth, or hospital number) in your answers.
Thank you for taking the time to complete this survey. Your feedback is very important to us.
If you are interested in more opportunities to engage with us and want to join workshops to further help shape the services we offer, please email gst-tr.selsicklecommunity@nhs.net.
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