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Help us to improve services for autistic people in south east London
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We would like to better understand the experiences of autistic people in south east London who access health and social care services. This will help inform the development of current and future services in the area.
Background
The Learning Disability and Autism Programme of the South East London Integrated Care Board (ICB) has been undertaking some work mapping services for autistic people across south east London. We identified some key gaps which are priorities for further service development. We also gathered the views of autistic people, and carers of autistic people, to further map services and to understand what services should look like.
How people were involved
We created alternatives ways for people to participate and share their experience and tell us what they think.
A questionnaire asking for the views and experiences of autistic people and carers of autistic people. We were keen to hear from as many autistic people, and their carers living in south east London, as possible.
We invited autistic people, and their carers, to attend two focus groups where we discussed:
how we can ensure we are aware of gaps in services for autistic people
how we address these gaps to ensure autistic residents of South East London get their needs met
We also recruited two lived experience members to actively participate in our working group.
Through the online survey and the two focus groups, autistic people and their carers shared their experiences, highlighting key gaps in support and making recommendations.
Key findings:
While 89% of respondents had accessed services, 75% said that they would welcome more tailored mental health support.
Respondents also reported the need for support in ‘understanding my autism’, services to help with communication needs, and daily life skills.
Carers identified similar insights, with 75% highlighting the gap in services that support the person’s mental health needs. They recommended, as a high priority, the need for services to help autistic individuals build independence and navigate transition to adulthood.
In additions the two focus groups revealed four key priorities:
Improving training and awareness for frontline health professionals
These findings are informing our plans to improve the support for autistic adults to live healthier, more independent lives in south east London.If you have any questions about this project please contact the team at neuro.diversity@selondonics.nhs.uk.
We would like to better understand the experiences of autistic people in south east London who access health and social care services. This will help inform the development of current and future services in the area.
Background
The Learning Disability and Autism Programme of the South East London Integrated Care Board (ICB) has been undertaking some work mapping services for autistic people across south east London. We identified some key gaps which are priorities for further service development. We also gathered the views of autistic people, and carers of autistic people, to further map services and to understand what services should look like.
How people were involved
We created alternatives ways for people to participate and share their experience and tell us what they think.
A questionnaire asking for the views and experiences of autistic people and carers of autistic people. We were keen to hear from as many autistic people, and their carers living in south east London, as possible.
We invited autistic people, and their carers, to attend two focus groups where we discussed:
how we can ensure we are aware of gaps in services for autistic people
how we address these gaps to ensure autistic residents of South East London get their needs met
We also recruited two lived experience members to actively participate in our working group.
Through the online survey and the two focus groups, autistic people and their carers shared their experiences, highlighting key gaps in support and making recommendations.
Key findings:
While 89% of respondents had accessed services, 75% said that they would welcome more tailored mental health support.
Respondents also reported the need for support in ‘understanding my autism’, services to help with communication needs, and daily life skills.
Carers identified similar insights, with 75% highlighting the gap in services that support the person’s mental health needs. They recommended, as a high priority, the need for services to help autistic individuals build independence and navigate transition to adulthood.
In additions the two focus groups revealed four key priorities:
Improving training and awareness for frontline health professionals
These findings are informing our plans to improve the support for autistic adults to live healthier, more independent lives in south east London.If you have any questions about this project please contact the team at neuro.diversity@selondonics.nhs.uk.
South East London Integrated Care Board (ICB) are reviewing the services available for autistic people living in the area (in Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark). We know that there are gaps in services and we want to think about what services would fill those gaps. We are conducting a survey to better understand the needs of autistic people living in South East London regarding the services available to them. Your responses will help us identify gaps in current services and shape future services to better meet your needs. Your input is incredibly valuable, and we appreciate you taking the time to share your thoughts.
Please note: You can answer the questions anonymously, and your responses will be confidential. The survey will take approximately 10-15 minutes to complete.
At the start of the survey you will be asked if you are an autistic person or a carer of an autistic person. The survey then splits into different questions about your experiences depending on your choice. If you identify as both an autistic person and a carer, you are encouraged to complete the survey twice to reflect your views on both services for yourself and services for the person you care for.
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Please see role outline for further information and role specification.
Please note that by completing this application you are confirming that you can commit to 1 day per month of involvement with flexibility around days and times of meetings as needed.
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The NHS South East London would like membership of the development group to have a broad reflection of different communities across south east London to help us plan and monitor relevant engagement across diverse communities.
The individual information on this form will be kept confidential by the NHS South East London.
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