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South East London Sickle Cell Community Care Survey

We in south east London are committed to improving community care for people living with sickle cell disorder of all ages. Community services are healthcare and support services given outside of hospitals, often in local areas or homes, that help people with their health and well-being. 

We would value your feedback from this survey to understand your previous experiences of sickle cell community care. All your feedback will be used to guide us in shaping and developing the best health services for sickle cell patients in our community.

We are keen to hear from people living with sickle cell of all ages, alongside parents or carers of people living with sickle cell disorder in south east London: Bexley, Bromley, Greenwich, Lambeth, Lewisham or Southwark.

This survey is anonymous. Please do not include any identifiable information (like your name, full address, date of birth, or hospital number) in your answers.

Thank you for taking the time to complete this survey. Your feedback is very important to us. 

If you are interested in more opportunities to engage with us and want to join workshops to further help shape the services we offer, please email gst-tr.selsicklecommunity@nhs.net.

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7.  

If the person living with sickle cell has previously accessed sickle cell community services, who have they seen or spoken to? (Please tick all that apply).

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The person living with sickle cell (or parent/carer) finds it easy to access community care in their area
The person living with sickle cell (or parent/carer) feels comfortable speaking up for their care needs
The person living with sickle cell (or parent/carer) has a say in what happens with their care
The person living with sickle cell (or parent/carer) feels listened to when raising concerns
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12.  

As part of the new service, people living with sickle cell will be able to see a variety of different clinical staff in the community. Please indicate below which community roles interest the person living with sickle cell (or parent/carer) most. You can select as many options as you wish.

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