London sickle cell improvement programme

London Sickle Cell Improvement Programme Sickle cell care is changing! The ‘No One's Listening’ report, which was published in 2021, showed that people with sickle cell have been treated badly by the healthcare system (SCTAPPG, 2021). This includes substandard care in hospital wards and emergency departments, not enough investment in sickle cell care, and negative attitudes towards sickle cell patients by staff. Therefore, the London Sickle Cell Improvement Programme (LSCIP) was set up, where the NHS is investing £20 million into new services across London over the next two years, to mark the initial steps to making care better and more accessible to all people living with sickle cell disorder. It is hoped that more funding will follow to allow this work to continue. Urgent and emergency care Across London, we are developing emergency specialist services with telephone triage to bypass the emergency department and access expert care with red cell teams. These pilots are currently being set up from spring 2024. Speak to your red cell care team to find out more about the hospitals where these are being set up. Community Services Across London, the NHS is investing into new and improved community services for patients with sickle cell disorder for greater support. These community services will be going live from spring 2024. Each area is tailoring these services for the best care of their patients. Speak to your red cell care team to find out more. Children and young people peer to peer mentoring programme This Sickle Cell Society led programme connects young people with sickle cell disorder aged 10-24 to mentors who can support their health and wellbeing. To find out more, click here or speak to your red cell care team: www.sicklecellsociety.org/mentoring/ Universal care plan The universal care plan (UCP) is a digital patient care record. It is being expanded to meet the needs of those with sickle cell disorder across all settings of care. This means that you will be able to access your digital record online. Speak to your red cell care team to find out more. UCPs for people with sickle cell will go live across London in April 2024.